I personally hold a special place in my heart for those affected by Cystic Fibrosis and their families.
Recently, my little girl was accidentally misdiagnosed with the disease. Being told that your baby may not live to see their mid-30's is beyond life-changing and extremely heartbreaking. The Cystic Fibrosis Foundation was there to help us understand what this meant for our daughter and our family at that time.
Upon receiving the news of the mistake, we felt overwhelmed with joy, yet it was overshadowed with heartbreak for those hundreds of parents who receive the same news about their own children each year - those whose pain I shared upon learning such a prognosis about my own daughter on that one day.
Since that very day, I've been so grateful for the second chance my daughter has received at living a full life. However, I've never forgotten the lives of those children and their families that still remain forever changed by the disease. Therefore, I've made it a personal mission of mine to help the Cystic Fibrosis Foundation in any way I can - starting with my own personal donations.
For those of you who are unfamiliar with Cystic Fibrosis, the Cystic Fibrosis Foundation (CFF) defines it as "an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide)....About 1,000 new cases of cystic fibrosis are diagnosed each year. More than 70% of patients are diagnosed by age two. More than 45% of the CF patient population is age 18 or older. The predicted median age of survival for a person with CF is in the mid-30s."
The Cystic Fibrosis Foundation (CFF.org) is an amazing nonprofit donor-supported organization whose mission is to the "development of the means to cure and control cystic fibrosis and to improve the quality of life for those with the disease".
You may remember a few weeks back when I took JewelMint's Humanity Bracelet and created a one-of-a-kind Humanity Necklace. On the back of the pendant is a beautiful saying: "To love, to live and to give and give..."
When the thought of creating this necklace came to mind, I really took its meaning to heart...
I am kindly asking you to make a donation (of any amount) to the Cystic Fibrosis Foundation. In turn, I am giving away this meaningful piece to one lucky donor.
Here's how you can help and to enter to win:
1) Make a donation (any amount you wish) to the Cystic Fibrosis Foundation. Please click on the link in the bottom bar below to make a direct and secure donation with Paypal or at CFF.org here. 2) Comment below with your first name and email address.
Ends Wednesday, November 30th, 2011 at 11:59pm PST. The winner will be announced on Friday, December 2nd and will be kindly asked to supply to us their electronic donation receipt with both the donation amount and all personal information blacked out in order to verify participation. The amount of your donation does not increase your likelihood of winning as this blog has no way of tracking the actual figures of the donations made. Winner's comment will be chosen at random using Random.org. This contest is open to all entries including U.S. and International.
Thank you for your support!
xoxo, Lily
Click here to make a donation to the Cystic Fibrosis Foundation at CFF.org. Learn more about Cystic Fibrosis.
This is amazing, Lily! Such an amazing idea and a worthy cause. Researching Cystic Fibrosis is so important. Let me know if there is anyway that I can help you with this.
ReplyDeleteLily, what a fabulous idea! This is a great way to bring meaning to the humanity bracelet's message. I'm glad to help you and the CFF out with my small contribution.
ReplyDeleteCaitlin
caitlin.lee.browne@gmail.com
I love that your doing this! I lost my very sweet Uncle to this terrible disease on Christmas Eve when I was a little girl. He was diagnosed with CF as a young boy and passed at only 30 years old. I remember him suffering a lot and always having a breathing tank with him. To keep positive, I remember he would make the most beautiful leather wallets and purses for my family. It really hurt our family to see him like that, but we know that he is still with us and in a much better place now. My Uncle was my Dad's brother and my Dad has since then joined him up there in heaven, he passed 5 years ago at only 47 but not to CF. So I want to say thank you for doing something to help the CFF and I am so so happy to hear that your daughter doesn't have this terrible disease and will live a very long and happy healthy life! God bless
ReplyDeleteAmanda
forzono3@yahoo.com
Hi Breanne - Thanks so much for your support! I'm sending you an email here shortly :)
ReplyDeleteCaitlin - Thank you so much for making a contribution! Every little bit goes a long way.
Amanda - Thank you so much and I am so sorry for your loss. I can't imagine the pain your family has suffered. I very much hope that they are able to find a cure someday soon as 30 is way too young to pass. I have a friend who also lost her son to the disease at the age of 7. I don't know how she got through it except to only know that he was in a better place without any suffering. God bless you too. :)
I'd love to help out. I look forward to your email.
ReplyDeleteThis is awesome! I'm participating in Great Strides this coming spring to support CF!
ReplyDeleteKim Do
kimdo628@live.com
this is absolutely fantastic.
ReplyDeletei stumbled upon your blog after purchasing the Nordic Treasure Necklace from jewelmint; which sends proceeds to the Free The Slaves organization... (i was looking for more information on the organization).
i try to help wih as many organizations i can, in any way that i can. even a small amount of support goes along way. that's why i wanted to commend you on your blog.
this post made my heart happy.
donating now. =]
happy holidays!
jac
jaclyn.lopes@gmail.com
Awe Lily this is so sweet and thoughtful of you! It's such a blessing that your baby was misdiagnosed, but I'm sure it was a huge scare. I gladly gave what I could to help this nonprofit.
ReplyDeleteAnd thanks for having such a wonderful blog for the JM community :)
Emily
emcs81@gmail.com
I accidentally stumbled upon your blog searching for JewelMint information, and was really touched by your story. This is a wonderful thing you're doing! (Love what you've done to make the necklace, too.)
ReplyDeleteI've never met anyone who had CF personally, but it breaks my heart just to imagine how one can receive such a tough diagnosis, especially seeing all my friends having babies/young kids now.
Was glad to see gifts to CFF are being matched at this time :) Makes me happy to help even if it's just a little bit - now it's doubled! I decided I'd donate to CFF instead of going to JewelMint to buy another piece. :D
Aya
besttoromc@yahoo.com
This is a great idea to give back to those who really need it. I hope everyone donates!
ReplyDeleteMichelle
Michybebz@yahoo.com
Thank u for posting a reminder to donate. Hope I'm not too late.
ReplyDeleteI was able to make a small donation. My best friend's little sister has CF so I am honored to contribute.
Melissa
mel_nyu86@hotmail.com
Just came across your blog I love it & I love this necklace. I hope my entry isn't to late either I am not sure about pst. Val prettyinpink4554@yahoo.com
ReplyDeleteHello, (Happy Chinese New Year!)
ReplyDeleteDid you happen to announce the winner yet?